My Fight with Crohn’s Disease

Andrew for Webinar 1When I was 19, I almost died of Crohn’s disease.  I had eaten at a restaurant where it appeared I had contracted food poisoning.  Shortly after the meal, I experienced abdominal cramping, fever, and diarrhea.  After two days, my condition had not improved so I visited the health clinic at the university I was attending.  There, I was prescribed the sedative Valium, and told to take hot baths and Tylenol.  After several days, it became obvious that this regimen was ineffective.  At this point, I was very weak and took a cab to the emergency room.  I was told by the doctors at the hospital that there was nothing they do and my symptoms should clear up on their own eventually.  After a few more days of terrible shooting abdominal pains, diarrhea, fever, inability to keep food down, and weakness, I was finally admitted to the hospital.

Once there, my condition only worsened.  My temperature soared to 106 F.  I was put into intensive isolation where anyone entering the room had to put on a disposable gown, mask, hat and surgical gloves–all of which were burned after being discarded.  The latest treatments and high-tech equipment were unsuccessful in lowering my body temperature.  As a last ditch effort, I received alcohol rubdowns in order to reduce my temperature.  My only nutrition was received through a tube.  I was injected with intravenous antibiotics as well as with Valium every four hours.  Finally, with rest, my condition slowly improved.  After innumerable tests, I was finally diagnoses with Crohn’s disease.  I spent the next month at home recuperating, eating a limited-fiber diet, and taking vitamins and antibiotics.

Growing up, I had a cast-iron stomach.  I could consume enormous amounts of food.  As a teenager, I became aware of a sensitivity to spaghetti–one of my favorite foods.  Sometimes I could eat the dish and not have any symptoms, while other times, I got gas pains.  It wasn’t until I was studying in college that I realized I, in fact, had chronic digestive symptoms.  Looking back, it is easy to identify the source of my problems: stress, lack of exercise, and the college cafeteria.

Stress

In terms of stress, at the time I was experiencing great personal turmoil.  I was three thousand miles away from my family in a new town where I did not have many friends.  I had just finished a job as a counselor to abused and emotionally disturbed children, an experience that brought me joy and satisfaction, but was also traumatic.  While at college, my grades were not good enough for the graduate school that I wanted to attend.

Exercise

As for exercise, what little I did get was even stressful.  I was one of the only white basketball players in my neighborhood and I was often heckled with racial slurs. In high school, I had been an athlete and played on several varsity teams.  This ensured that I was getting exercise on a nearly daily basis.  Unskilled enough to make the university basketball team, I decided to focus on my studies, which seemed more important.

Diet

As you can imagine, a young single man away from home for the first time, my diet deteriorated.  The college cafeteria’s offerings where either not appetizing, or were loaded with grease.  Fat and grease, unsurprisingly, contribute to digestive conditions.  At this point in my life, I was trying to be a vegetarian and was eating many foods that were not good for me.  I used soy and cheese as my main sources of protein, both of which are common allergens.  Allergens can cause inflammatory conditions to flare up.  I indulged in sweets, which contribute to digestive disorders, as does alcohol.  Alcohol was in no shortage at parties each weekend and I often had beer a few days a week while socializing or watching sports.

Milk also played a part in my digestive problems.  I believe now that humans should stop drinking milk at age eighteen or younger.  Anyone with a digestive condition should stop regardless of age.  No wonder I felt like I had an active volcano in my stomach and why I prayed for relief.

From Doctor to Doctor

I initially visited the campus health clinic with my symptoms and was told it was my nerves.  Then I was prescribed the sedative phenobarbital and referred to the school psychologist who told me, “Your stomach isn’t messed up, you are.”

In the year leading up to my hospitalization with Crohn’s, I was sick much more than usual.  I had taken a number of rounds of antibiotics, which destroy the friendly bacteria in the intestinal tract as well as the disease-causing ones.  The resulting imbalance very well may have been the cause of my symptoms.  I was next referred to a gastroenterologist who administered a barium enema.  He said that I was not intolerant to milk, that there was nothing wrong except that I had a “spastic colon.”  He prescribed fiber products, which only made my symptoms worse.  One night, after eating a spaghetti dinner, the tearing abdominal pains forced me to the local emergency room.  My stomach was pumped, and though weak, I felt much better the next day.

During part of this time I was living in rural Mendocino County in California. It was rumored that the water was bad and many of my neighbors either boiled their drinking water or drank bottled water; I took no such precautions since there was no formal decree. Later, when I frequently suffered bouts of stomach flu–like symptoms, I began to believe that I had contracted a parasitic infection through drinking the infected water. Parasitic infections are a common cause of digestive problems.

I also suffered from terrible hay fever in the spring and summer. That year, I read a book about natural treatments for hayfever. At the suggestion of this book, I stopped drinking milk, even though my doctor had said I was not milk intolerant. My digestive and allergy symptoms did in fact improve, but other remedies I tried from health food stores didn’t seem to help.

Finding Herbal Medicine

After graduating from college, I went to live in San Francisco. One of my jobs was selling an ancient Tibetan herbal remedy to health food stores and alternative doctors. The remedy had been studied in clinical trials in Europe, although the U.S. Food and Drug Administration had not approved it for sale in the U.S. This exposure to alternative medicines opened up a new world to me. I also began to learn about Chinese herbs. I tried them during the periods when I had flare-ups. Since being hospitalized initially, I still had several flare-ups a year, during which I experienced severe pain and had to eat a bland diet. Much of the rest of the time I had frequent gas, abdominal bloating, and a feeling of fullness. I found that by taking a Chinese herbal remedy, I was able to reduce the flare-ups to two or three days instead of the usual two weeks. I also found Chinese herbal decoctions (herbs boiled to make a tea) gave me the energy to recover from colds and flu.

These experiences lead me to study all I could about herbal medicine. I developed a passion for Chinese herbs, introducing doctors, health food stores, and individuals to herbal medicine. Testimonials from doctors and herbalists, whose patients used these products, began coming into the office where I worked. After this company folded, demand for our herbal remedies remained. I decided to start my own company manufacturing Chinese and Western herbal products, slowly adding more and more formulas to my line.

These early days were very trying. I faced a vendetta by a federal government employee who seemed to consider my demise a way of boosting his career. Luckily his actions were so outrageous (such as sending an unapproved and slanderous questionnaire to my customers) that my congressman took an interest and helped resolve this situation. During my tribulations, I kept my goal in mind: to help the millions of people who have digestive, gynecological, and immune disorders by publicizing, researching, and writing about the benefits of herbal medicine.  The herbal formulas that I have developed have now been successfully used by thousands of digestive patients. Several of the formulas have been researched at prestigious universities such as the University of California, San Francisco.

Fortunately, in the last ten years, herbal medicines have moved from the health food fringe movement into the aisles of major drug store chains. Consumers and even medical professionals are now more open to their use. When I went to my ear, nose, and throat doctor even she extolled the benefits of two popular herbs, echinacea and ginkgo!

Managing My Disorder

Many people ask me about the current state of my Crohn’s disease. In the past ten years I have had only one serious flare-up. It was brought on by eating popcorn, a food my body does not tolerate. Luckily, herbal remedies rapidly resolved that flare-up. I have never been on steroids, a common treatment for Crohn’s. For this, I am very grateful. I quickly resolve any abdominal bloating or intestinal gas I experience by being more careful about what I eat and by taking herbal remedies. I also have come to understand that antioxidant vitamins and folic acid have a preventive effect on inflammatory mechanisms. I take these on a daily basis. In order to avoid antibiotics, which for me cause an exacerbation of digestive symptoms, I treat any cold or flu with herbs. Finally, I remain committed to exercise, daily meditation, and my mission of helping people with digestive and other disorders.

Diverticulosis/Diverticulitis

Diverticulosis is a condition in which diverticula (small, bulging pouches) protrude inward anywhere along the digestive tract.  Although diverticula can occur in the esophagus, stomach and small intestine, they are most common in the large intestine.  It is thought that diverticula form as a result of spasms of the muscles in the intestinal wall.  Spasms cause the lining of the intestines to bulge through the weakest area of the muscle, much as a weak, bulging spot might develop in a defective tire or basketball.  Diverticulitis is a condition that occurs when these diverticula become inflamed or infected.

Diverticulosis affects half of the U.S. population over the age of 60 and becomes common in adults over 40.  It is thought that diverticula may be caused by lack of fiber in the diet as their occurrence is very rare in developing countries where grains, fruits and vegetables are the main foods consumed.  The theory is that adding bulk to the stool gives the muscles a mass to work against, decreasing the likelihood of spasm in the same way that well-toned skeletal muscles are less likely to cramp than those that are not exercised regularly.

Symptoms

  • Pain that’s often sudden, severe and located in the lower left side of the abdomen
  • Less commonly, abdominal pain that may be mild at first and become worse over several days, possibly fluctuating in intensity
  • Change in bowel habits
  • Abdominal tenderness
  • Fever
  • Nausea and vomiting
  • Constipation
  • Diarrhea
  • Bloating
  • Bleeding from your rectum (less common)

Self Help

Conventional medical treatment for diverticulosis is to consume more fiber and to take psyllium supplements.  Serious complications can accompany diverticulitis in patients who develop lower abdominal pain with spasm or fever and should consult a physician in these cases.

Current Western Treatments

Routine cases are treated with bed rest, a liquid diet and and antibiotics.  The symptoms of colon cancer and appendicitis are similar to those of diverticulosis or diverticulitis, and anyone with acute abdominal pain should seek out a physician for a definitive diagnosis.  A case of diverticulitis that requires the help of a physician will usually be treated with bed rest, a liquid diet for several days, and antibiotics.  If the patient is experiencing intense pain, the doctor may prescribe an over-the-counter pain reliever such as acetaminophen.  If the pain is severe, a more potent pain reliever may be used, but as these sometimes cause constipation, they may aggravate the problem.  Hospitalization maybe required if the patient is at risk of bowel obstruction or peritonitis.

If an abscess is developed, it must be drained.  This can be done with a needle through the skin that is guided by an ultrasound or CT.  A catheter will then be used to drain the abscess.  A bowel resection maybe required after this procedure.

A doctor may recommend surgery in the case of an abscess, fistula, or reoccurring diverticulitis in order to remove the diseased part of the colon.  Two surgeries are possible.

  • Primary Bowel Resection - This procedure involves removing the diseased part of the colon and reconnecting the healthy sections.  This will allow for normal bowel movements in the future.  The procedure can be done traditionally (open surgery), or laparoscopically.  In open surgery, one long incision is made in the abdomen while laparoscopic surgery requires three or four small incisions.
  • Bowel Resection with Colostomy – This procedure maybe required if there is not enough healthy tissue to reconnect the colon with the rectum.  With a colostomy, a surgeon makes an opening in the abdominal wall (called a stoma) through which waste will pass into a bag.  After months of healing, it maybe possible for an additional operation to then reconnect the colon and rectum.

A Case Study in TCM Treatment

A 60-year-old woman had abdominal cramping and constipation due to diverticulitis.  Traditional Chinese diagnosis found her pulse to be thin, wiry, and tongue pale with a red border, suggesting heat in the liver.  She also said she felt hot in the afternoon although the weather was usually cold.  She was prescribed a mixture of herbs that included isatis extract leaf and root, codonopsis root, oyster shell, bupleurum root, Black Walnut hulls, terminalia fruit, ginger rhizome, and mume fruit among others.  She was also advised to have three cups of chamomile tea per day.  After two weeks, the patient noticed less abdominal pain.  Since the hot signs had also abated, her herbal prescriptions were reduced but continued for several months.  As the weather began changing and she showed signs of developing a cold condition, she added White Atractylodes rhizome, poria sclerotium, Baked Licorice root and citrus peel.  The patient was very satisfied with her herbal therapy as her abdominal pain has been alleviated and her bowel movements have become more normal.